REGISTRATION CLOSED!!!! RESCHEDULED: FDA AdComm Meeting to consider Eteplirsen - April 25, 2016

Registrations are closed

YOU DO NOT NEED TO BRING A TICKET WITH YOU. This is just so we have a head count and can keep in touch! We will not use your contact information for any other purpose.

REGISTRATION CLOSED!!!! RESCHEDULED: FDA AdComm Meeting to consider Eteplirsen - April 25, 2016

By Duchenne Alliance, Parent Project Muscular Dystrophy, CDMD/Be Reasonable at UCLA, the Race to Yes, the Jett Foundation

Location

College Park Marriott Hotel and Conference

3501 University Blvd East Chesapeake Ballroom Hyattsville, MD 20783

Description

On Monday, April 25, an FDA Advisory Committee will meet to consider eteplirsen. This is a historic moment for our entire Duchenne community.

We have shown that a united Duchenne community is very powerful. Let’s stay united and do this together.

Join us for the Advisory Committee meeting, a community reception the night before, and other events over Sunday and Monday. We will support you and make it as easy as possible for you to participate. If you need help with travel expenses, please indicate that on the registration form and we will be in touch.

More details to come as events and logistics are confirmed. We have been preparing for this moment for years. We have had to endure delay after delay. But we are grateful to be part of this incredible community and will continue to press on until everyone with Duchenne has access to safe, effective treatments.

LET’S MAKE DUCHENNE HISTORY!

TAKE A STAND. FILL A SEAT. RAISE YOUR VOICE.

Sales Ended